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The Fungus Among Us: 3 Things I Learned From a Microorganism.

If it seems like I’ve abandoned my new blogging career in it’s infant stages, let me assure you, I certainly have not.

We interrupt this already hectic schedule to bring you a life lesson.

You know those moments in life when God throws you a curve ball just to make sure you’re still paying attention? Well, I was simply having a “moment”.

A few weeks ago my husband Matt hit a wall (that’s Light family speak for “got really freakin tired”) while on vacation with friends in New Hampshire. I can vividly remember him touching his throat on the drive up saying he felt like he was coming down with something. By the end of the trip it was clear he was more than just a little under the weather. A week later, after two trips to urgent care, he was admitted to a hospital in Boston.

For the next 7 days he was subjected to just about every test you could imagine; daily blood and urine labs, x-ray, ct scan, mri, biopsy, and a grand finale spinal tap. On day 6, doctors informed us that they had exhausted their testing options and were turning their search efforts over to Dana Farber Cancer Center.

So, we sat together on his bed, quietly talking about what might lay ahead. We also had to admit to ourselves that God clearly had been trying to get our attention,  and that our faith in Him would see us through whatever it was we were about to face… yet again.

Two hours later, three infections disease doctors came through the door with wide smiles, they found it! Fungi was finally found in a biopsy sample taken two days prior.

Diagnosis: Histoplasmosis. What? Really? Who gets this kind of stuff? 

This fungi!!Matt and Susie

How? In a few words: old barn rehab back in July + 130 years worth of moldy hay, decaying animals, and animal poo flying through the air + failure to wear air filtering apparatus= one gnarly case of histoplasmosis.

Why? Matt has Crohns disease and takes Humira to help lower his overly enthusiastic immune system. You know those Humira ads on TV? Have you ever listened to the very end when they whisper “certain fungal infections may occur”? Of course not! No one listens to that stuff!

What I learned from our friend fungus: 

  1. In times of adversity you must choose faith over fear (stay with me now, I’m about to get a little philosophical here). Faith and fear cannot be experienced together. Worrying, which is a side effect of fear, only happens in the absence of faith. It’s crippling and futile trying to do God’s job. I know because I do it a lot. Worrying about the outcome of a situation is the equivalent of saying that you don’t believe that God is in control or capable of taking care of you. Ouch! Once you decide to put your faith in God, you are free from the burden of worry and fear, and so much more able to deal with the situation at hand.
  2. Sometimes your faith muscle needs a workout. The truth is, I’m a repeat offender! When I’m faced with a “storm” my process looks like this: I react to perceived crisis with fear. Fear quickly turns to worry. Worry takes over every thought in my mind, prohibiting any normal cognitive function. Once I finally come to the realization that my worrying will not solve my current situation, with my head hung low, I hand it over to God. Forgive me for picking up what I've already laid down at your feet.
  3. Being grateful is truly the best medicine. I was raised to “say my prayers” before bed, and to this day I never close my eyes at night without thanking God for my husband, children, family, and friends. But when times are really tough it’s impossible not to see the dozens and dozens of less obvious and often over looked blessings in your life. When Matt was at his sickest in the hospital, I would mentally list all the things that God was providing to help us get through this seemingly impossible situation; everything from our family and friends’ genuine willingness to help see us through this dark time, to our access here in Boston to the most sophisticated medical facilities and brightest doctors in the world. The kindness and expressions of love from the people around us was truly humbling and we will be forever grateful.

On the Mend and Moving On!

We are currently settling back into “normal” life here at the Light house. This Tuesday the Light Foundation will be hosting it’s 12th annual Matt Light Celebrity Shootout. Of course my ambitious husband, still on the mend, will be there to welcome our more than 500 guests to Addieville East Farms in Mapleville, RI.

And, in case you’re wondering if Matt will be staying out of dusty old barns from now on… don’t be silly, he has THREE lined up already. However, he won’t be throwing caution to the wind next time and has already ordered a proper respirator.

I, on the other hand, am looking forward to diving back into the blogosphere and managing my hectic household. This time I will be on the lookout for all the little “not so obvious”  blessings throughout each day, and continually practicing letting fear give way to faith.

I just want to add a few very necessary thank you’s to some incredible people who selflessly helped us through these past few weeks. Whether it was offering prayers or putting your lives on hold to lend a hand, you are all family and we love you!

Marilyn, Mom, Dr. Rachel, Cindi., Margrette, Tara, Amanda, Jojo, Josh, Kaylee, Natalia, Leslie, Marcus,  Dr. Yaznik, Jennifer, Mark, Bill, Ann Marie, Carolyn, Lisa, Steve, Brian, Carrie, Jamie, Rob, Billy, Allison, Dave, Jack, Landyn, Cat, the entire McCarthy family, all the docs at Brigham & Womens, all Matt’s former teammates, and soooo many more! Thank you!

Susie Light

26 Comments

  • Melinda

    September 11, 2016

    Susie, you all have been in my prayers! Glad Matt is doing better and life can return to your crazy normal. Ha ? Thank you for your testimonial of God’s love in your lives!!

    • slight72

      September 22, 2016

      Thanks for reading Melinda!!

      xox

  • Angelique

    September 11, 2016

    Beautifully written!!! And I love love love your “philosophical” take on faith vs fear. Perfect!!! xoxo

    • slight72

      September 22, 2016

      Thanks Angelique! Deep thinking is very dangerous for me! haha!

      Susie
      xo

  • Ann S

    September 11, 2016

    I have loved reading your blog postings. This post was particularly hit home with the faith/fear dialogue many of us experience. I am so glad that Matt’s health is improving. Blessings to you and your family.

  • Melissa Adams

    September 11, 2016

    What a scare! Glad to hear Matt is mending and that the rest of you avoided the infection. Wishing you all the best on Tuesday and beyond!

    • slight72

      September 22, 2016

      Thanks Melissa! crisis averted! haha!

      Susie
      xo

  • Suzanne

    September 11, 2016

    Thank God that Matt is doing better. Will keep him in our prayers that his immune system gets a boost. Also Susie, thank you for be so “real” about how “worrying”. I was reading this and thought “this is so me” and I know God is control and He knows the outcome of the situation. Ugghhh…why do always think we are in control? God bless you for writing – continue to keep them coming. Praying for you and your precious family.

    • slight72

      September 22, 2016

      Thank you so much Suzanne! The more we practice letting God handle things the easier it gets! I am clearly not a fast learner. haha!

      Susie
      xo

  • Robin

    September 12, 2016

    Awe God bless all of you! While I can imagine your fear, it is also comical that he contracted a fungus from doing what Matt does. Happy “Yukon Cornelius” is on the mend. We love you and miss you!
    Keep on blogging we are all here for you.

    xoxo~

    • slight72

      September 22, 2016

      Thanks Robin! Old Yukon is on the mend!!

      Susie
      xo

  • Nicole

    September 12, 2016

    I loved this post, I was tearing up then I was super happy at the ending. Makes me appreciate things, gotta stop and do the little things more. 🙂 Great family!

    • slight72

      September 22, 2016

      Thanks Nicole! Happy ending for sure! So thankful!
      Susie
      xo

  • Darcy Coderre

    September 22, 2016

    I’m going through the same thing right now. I was diagnosed with blastomycosis after my lung biopsy. What a scare to be told for two months that I was probably dealing with lung cancer. I put my faith in God as well. I wish him less tired days and continued health!

    • slight72

      September 22, 2016

      Hey Darcy,
      We thought Matt had blastomycosis at one point too (very similar, I’m told). I cant imagine not knowing for 2 months. Isn’t amazing what faith can do?? Thanks for reading!

      Susie

      • darcy coderre

        September 23, 2016

        Hi Susie, I wish there was more information out there on how to deal with this fungus thing. I guess there are not a whole lot of cases especially in New England. Your husband is the only other case I’ve heard of that is similar to mine. Kind of makes a person feel alone in the fight to get better. I’m glad he has a good team of doctors behind him!

  • Maria

    September 22, 2016

    Lovely post, Susie. I am so very happy to hear that Matt is on the mend. As an avid and loyal Patriots fan, I followed Matt’s career and have enormous respect for what he did on the field and, more importantly, off the field. Having a son with Autism, I too have been tested with fear, until I allowed myself to realize my faith in God would guide me through the challenges I would inevitably be facing for my son and his future on a daily basis. God bless you, Matt and your lovely children. You are inspirational, Susie; a breath of fresh air in a world filled with far too much negativity. Thank you for your very timely blog at a particularly challenging time in my life and the reminder that worrying over things I have no control over is best replaced with prayer and giving thanks to God as the outcome is in His hands…

    • slight72

      September 22, 2016

      Maria, I’m so glad to hear that your faith has helped you through tough times as a mom. 11 years ago, our son Collin was born with complex congenital heart disease and had open heart surgery the day he was born. If ever my faith was tested… it was then. But He had a plan! He always does!

      xo

  • Donna Nickerson

    September 22, 2016

    I just saw the piece on Channel 5 news & as a nurse, I had to find out more . So I found myself pulling up your blog. Little did I know that it would be more to me than insight into a medical condition. It was a perfect and timely reminder of exactly what I needed to hear at exactly the right moment! Choosing faith over fear! So thank you!
    P.S. Thank you also to Matt for stopping by my MIL’s house some time ago to visit my sick nephew. He has passed on but we never will forget the kindness of others.

    • slight72

      September 22, 2016

      Hi Donna, I remember Matt going to see your nephew. It’s hard to keep faith in times like those… like really, really hard! Being fearful is natural, but choosing faith instead is actually so much easier… isn’t it?

      Thanks for reading!
      xo

  • Carol Congelos

    September 22, 2016

    Excellent blog Susie! I saw the interview on TV and then logged on to see your blog and there it was a photo with some very nice sweatshirts! haha ….It was a pleasure meeting you, your husband, and family when you were up visiting in northern NH! We had fun getting you all out on the water(even Matt!). I’m so sorry that trip was the beginning of some difficult weeks for you all but relieved to see things have improved. What a scare ! I hope you look us up if you are ever back up in the North Country! I look forward to reading more of your blog!

    • slight72

      September 22, 2016

      Hi Carol! We had such a blast paddle boarding with you guys! Thanks for reading the blog! Hope to see you again soon!!

      Susie
      Xo

  • Peggy

    September 23, 2016

    Susie, my daughter just sent us the story on Matt. Her name is Dia Polakovich and she attended school with Matt. With that being said I am very glad that his histoplasmosis was found and is being taken care of. My husband also has chrons and a few years ago also had histoplasmosis. It was a scary time while waiting to find out exactly what the diagnosis was. I pray he is doing well and also pray for you as I know how stressful it can be. Take care and God Bless
    Peggy Thornsberry

    • slight72

      September 25, 2016

      Peggy, Thanks for the comment. I’ve had a lot of people sharing their stories with us about histoplasmosis, but you’really the first to k.own someone who also has Crohns. Pretty scary stuff.

      Thanks for the prayers!!

      Susie

  • holly

    September 25, 2016

    Just saw the Maria Stephanos story and am so sorry you are going through this……my father was diagnosed in 1980 with histoplasmosis in his blood stream…….the diagnosis journey sounds similar to yours…..he was in Peter Bent Brigham (the precursor to the current BWH) for 2 weeks where they ran all kinds of tests and drew who knows how much blood etc…..even then it took so much time it seemed for the sample to “grow” to finally get a name to why my father who was never sick could not get out of bed…..16 at the time I still remember looking at my father leaving in the car w/ my mother driving (another sign my father truly was not feeling well!) going to the hospital for the 1st time ever-he was even born at home!. My thoughts and prayers are with all of you and now as the wife of a husband who as a carpenter has demo’d many different buildings with God knows what falling down onto him without proper gear……….maybe now the Matt’s diagnosis he will use the gear……I can dream. Thank you again for sharing your story. David’s hearing Matt’s story has more weight to my stories……He can identify with Matt on many levels-obviously the football, the skeet shooting. and has seen him at the store getting items for his UAV…..there are way too many hobbies in this house…sorry I digress….Bottom line, thank you again for sharing and know my thoughts and prayers are with you all……

    • slight72

      September 26, 2016

      Holly, Thank you so much for sharing your story! It really is so scary when someone you love is sick and the answers aren’t coming fast enough. Matt is participating in a study to help find ways to diagnose the disease more efficiently. Hopefully they come up with something soon! Thanks for the prayers and for reading the blog!

      Susie

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